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Patient Story Category: CPVT stories

Jadale

Before Jadale even knew about CPVT (catecholaminergic polymorphic ventricular tachycardia), it threatened his life more than once. But through the chaos, confusion, and isolation, he found something stronger than fear: his voice. And today, that voice carries a message of strength, resilience, and connection for others walking the same uncertain path. “Speak up, reach out, … Read more

Introduction to CPVT

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The Berko Family

Live Like Frankie: The Berko Family’s Journey from Loss to Legacy The phrase “Live Like Frankie” began as a tribute to a young boy’s boundless love, joy, and connection. For the Berko family, it has become a daily mantra—a rallying cry to live with purpose, to care deeply, and to connect unconditionally. Frankie’s parents, Jen … Read more

Recent Posts

  • Letter to the Duchenne Community
  • Letter to the CPVT Community
  • Letter to the Duchenne Community – INSPIRE DUCHENNE Positive Initial Clinical Trial Data
  • Letter to the FA Community
  • Letter to the Duchenne Community – INSPIRE DUCHENNE update & expansion

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© 2024 Solid Biosciences Inc. All Rights Reserved.
Solid Biosciences Inc., is a Charlestown, MA based life science company focused on advancing a portfolio of neuromuscular and cardiac programs.
The characterization of the discovery and development efforts on this website, as well as the expectations associated with them, are reflective of the current state of development and may change as the Company progresses.