Privacy Policy

Privacy Statement

This Privacy Statement relates to the online information collection and use practices of the websites, applications and many products and services operated by Solid Biosciences. We recognize that many visitors and users of our websites and applications are concerned about the information they provide to us, and how we treat that information. This Privacy Statement, which may be updated from time to time, has been developed to address those concerns. Solid Biosciences is a global business with networks, databases, servers, systems, support and help desks located throughout offices that may be in the US or around the world. The personal data you share with us will be protected by intra-group arrangements that we have put in place between all our entities to ensure specific and adequate safeguards exist with respect to the processing of personal data when it is transferred within the company; such safeguards incorporate the standard contractual clauses as outlined in the EU Directive.

What information do we collect and how do we use it?

We may collect personal and non-personal information, including professional profile data, in various ways, including directly from an individual (for example, when subscribing to a product or service, registering an account, requesting technical assistance for a product or service, or signing up for a newsletter), from our web server logs, and through cookies or other website tracking tools.

We may use or share personal and non-personal information for administrative and technical purposes such as website testing, development and upgrades, or technical support.

Under limited circumstances, we may share personal information with third parties, as described in this Privacy Statement and the Cookie Policy. For example, we may need to share personal information with law enforcement if we believe in good faith that the law requires it.

Please read below for more detail about the ways we collect personal and non-personal information. Individual-Supplied Information. If you purchase, contact us about or express interest in a product or service, we may ask you to provide some personal information, for example, your name, professional contact details and professional credentials, such as address, position, phone number, email address. We may use this information in a contact database for future reference if needed, which may then be used as described in the Marketing section.

If you are requesting help with technical issues, we may also ask you to provide information about your computer, computer system, and/or the issues you are trying to resolve. This information is necessary to help us answer your questions. We may record your requests and our responses for logging and quality control purposes.


How is personal information protected?

We have implemented reasonable and appropriate security measures to help protect personal information from accidental loss and from unauthorized access, use, or disclosure. We use and virus protection software. Despite these security measures, we cannot guarantee that unauthorized persons will never be able to defeat them.

Who else has access to personal information?

We may disclose personal information to affiliated and non-affiliated third parties to help with such tasks as marketing, providing technical or other customer support, enforcing the Terms of Use, meeting our contractual obligations with content and technology providers, as needed in connection with the transfer of our business assets, or reporting to law enforcement if we in good faith believe it is required by law. Although unlikely, Solid Biosciences or a trusted third party may need to access personal information in connection with a digital forensic investigation of a potential security incident.

How may I correct, amend, or delete my personal information?

If you do not want your information to be used to contact you about our products and services, please see the Marketing section for instructions. If you uploaded, submitted, or otherwise provided personal information in connection with your use of this site and you would like it corrected, revised, or deleted, please see the Marketing section for instructions on how to do so.

Web server logs 

When you use Solid Bioscience websites, products or services, our servers may automatically capture and save certain information electronically. These server logs include information about your device’s use of our website(s) (“your device” may include a desktop or laptop computer, mobile device or similar device). Examples of the information collected by our servers include:

  • Your device’s Internet Protocol (IP) address
  • The name of your device’s Internet service provider
  • The city, state, and country from which your device accessed Solid Biosciences
  • The kind of browser or device used to access the newsletter information or a website
  • The way your device navigates through a database or Solid Biosciences website
  • The date and time of usage
  • The web page from which your device arrived at our website(s)
  • The content you viewed on our website(s) and/or when using the products or services
  • Searches/queries that you conducted via our website(s)

The information collected via web servers helps us to administer our website(s), analyze their usage, improve their content, protect content from inappropriate uses, and help our websites better operate.

Locally Stored Data from Browsers and Devices. We may collect and store information (including personal information) locally on your device using mechanisms such as browser web storage (including HTML 5) and application data caches.

Cookies and other tracking tools

Cookies and other website tracking tools are small text files sent to your Internet browser from a web server and stored on your computer's hard drive. Since many websites rely on cookies and/or other tracking tools to help tailor an individual’s experience, most Internet browsers are initially set up to accept them. If you object to cookies or other types of tracking tools, you can review the settings of your browser for guidance on how to manage or refuse to accept cookies and other tracking mechanisms. If you choose to modify how your computer will accept cookies, please be aware that the functionality of websites or online services may be affected.

For more information about the use of cookies on the website, please view the Cookie Policy.

“Do Not Track” and Tracking Protection. Some newer Internet browsers have incorporated Do Not Track features, and when turned on, they send a signal to the websites you visit, telling the website that you do not want to be tracked while browsing. Websites differ in how they respond to these Do Not Track signals, as there is not yet a common understanding of how to interpret the Do Not Track signal. Because of this lack of clarity, Solid Bioscience does not respond to the browser Do Not Track signal. Thus, most cookies will continue to be stored on your hard drive until you delete them.

Cookie policy

Similar to other commercial websites, this website utilizes standard technology called "cookies" and web server logs to collect information about how this website is used. Cookies are a feature of web browser software that allows web servers to recognize the computer used to access a website, among other things, which are described below. These small pieces of data are stored by a user's web browser on the user's hard drive.

Since many websites rely on cookies and/or other tracking tools to help tailor a user’s experience, most Internet browsers are initially set up to accept them. You can disable cookies or other types of tracking tools through your computer or device’s Internet browser settings. However, some parts of this website may not operate correctly if you disable cookies. You should check your Internet browser settings if you have any questions regarding disabling cookies.

There are many different types of cookies and uses of data collected by them. Information gathered through cookies and web server logs may include the date and time of website visits, the pages viewed, time spent on our website, and the websites visited just before and just after our website.

For example, this website may place temporary “session” cookies on your computer or device to help us confirm who you are and to help you navigate the website during your visits. These session cookies will be deleted automatically when you close your website browsing session. The information collected via session cookies is collected on an aggregate basis. None of this information is associated with you as an individual.

We may use services hosted by third parties, such as Google Analytics, to collect information about how users use our site, allowing us to compile reports and improve its functionality. Some third party services collect aggregated non-personal information, such as the information sent by a browser as part of a web page request, IP addresses, time and duration of website visits, and/or how you found our website, such as via a search engine or social media.

Other third party services may also combine the personal information you provide us (such as your email address) with cookies or other website tracking mechanisms. These services may be used to gather information, allowing us to provide you with more information about products or services in which you might be interested. When you submit personal information (such as your name or email address) on the site, we will ask if you agree to us using it to market and advertise our products and services.

How do we protect the personal information we collect?

We have implemented reasonable and appropriate security measures to help protect your personal information from accidental loss and from unauthorized access, use, or disclosure. Our websites are protected with Secure Sockets Layer (SSL) technology. Also, we store website usage information in a data center with restricted access and appropriate monitoring, and we use a variety of technical security measures to secure your data. In addition, we use intrusion detection and virus protection software. However, please note that we cannot guarantee that unauthorized persons or technological tools will never be able to defeat our security measures.

Who has access to the personal information we collect?

Our policies require our employees, contractors and vendors to protect the confidentiality of any personal information they may access. We may make personal and usage information available to all Solid Biosciences entities and unaffiliated trusted third parties in certain situations, for example:

  • to third party agents, service providers, and/or contractors who may perform certain functions or services, for example: helping us promote our products and services, as described in the Marketing section; billing, accounts receivable/payable functions; and/or content acquisition and licensing services;
  • to enforce our Terms of Use;
  • to meet our obligations to content and technology providers;
  • as needed in connection with the transfer of our business assets (for example, if we are acquired by another company or if we are liquidated during bankruptcy proceedings);
  • although unlikely, a trusted third party may need to access personal information in connection with a digital forensic investigation of a potential security incident;
  • as required by law in a matter of public safety or policy, or
  • if we believe in good faith that sharing such data is necessary to protect our rights or property.

Is my Information Used for Marketing Purposes?

No, your information will not be used for marketing purposes. We may offer you communications like newsletters, but we will not use your information for marketing of products or services. We may also share your information with third party agents, service providers, and/or contractors who help us deliver our products, but this is not for marketing purposes. If you do not want to receive such communications or information, you can update your preferences at any time. Your options include updating your account via our opt-out (where applicable), unsubscribing from all emails with this form, and/or using the "unsubscribe" mechanism in the emails you receive from us.

If you have any additional questions regarding these communications or use of your information for marketing purposes, please contact our Team at

Acknowledgment of transfer

Our websites, applications and many of our products are operated in the United States. If you are located outside of the United States, please be aware that any information you provide to us may be transferred to the United States and/or third countries. We have put in place the appropriate measures to ensure that any personal information transferred from the EEA and other jurisdictions that are subject to data transfer restrictions will be adequately protected for the purposes of those rules. Such safeguards include compliance with the standard contractual clauses as outlined in the EU Directive. By using our websites and applications, or participating in any of our services and/or providing us with your information, you acknowledge that your personal information may be transferred to other destinations.


Our websites and communications may contain links to third party sites as well as to other sites owned and/or operated by Solid Biosciences. Please be aware that Solid Biosciences is not responsible for the privacy practices of any third party sites. Please also be aware that the privacy policies of other sites may differ significantly from the privacy policy of our websites and applications. Therefore, we encourage our users to read the privacy statement of each and every Web site that collects personally identifiable information. This Privacy Statement applies solely to information collected by our websites and applications.


If you have any additional questions or concerns related to this Privacy Statement and/or our practices, please contact the Solid Bioscienses Team at


If our information collection and usage practices change, we will post the changes here and notify affected customers. This Privacy Statement was last updated in July 2017.

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