March 14, 2017

Solid Honors Rare Disease Day 2017

Solid Biosciences is proud to join the global Rare Disease community to recognize Rare Disease Day 2017. Sponsored by EURORDIS on the last day of February each year, Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

In our mission to end Duchenne muscular dystrophy, we understand how important it is to work together with the entire Rare Disease community – researchers, fellow companies, government and families – to bring forward new innovations and effect true change.

This year, we were honored to participate in the conversation in several ways, including attending MassBio’s Rare Disease Day 2017 Massachusetts State House event and the Jett Foundation’s 2nd annual Rare Disease luncheon. In addition, our team sported their best jeans to support the Global Gene’s Wear That Your Care® campaign.

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Grants from the charities Duchenne Now, Save Our Sons and Fight DMD will support important work in furthering Solid’s gene therapy and disease modifying therapy programs.

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The biologic candidate LTBP4 has the potential to promote muscle health and reduce fibrosis in patients with Duchenne muscular dystrophy.

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Carl Morris, Solid Biosciences’ vice president of Research and Development, speaks about being a “Game Changer in Rare Disease.”

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