Insights:Solid Honors Rare Disease Day 2019

In honor of Rare Disease Day, Solid Biosciences joined the global rare disease community to raise awareness of rare diseases and the challenges faced by patients and families living with these conditions. Every year, on and around the last day of February, millions from all over the world come together to elevate awareness of this important topic. The campaign is led by the European Organization for Rare Disorders (EURORDIS) and the National Organization for Rare Disorders (NORD) in the U.S.

This year, Solid was honored to host Team IMPACT, a national nonprofit organization that connects children with serious illnesses with local college athletic teams, as well as a participating Duchenne family, his coach and members of his team. Additionally, Solid employees sported stripes to support this year’s Rare Disease Day campaign, “show your stripes”. We appreciate Team IMPACT’s tremendous work and the life-changing experience it provides to the Duchenne and rare disease communities. As a company singularly focused on Duchenne muscular dystrophy, Solid will continue to fight alongside the Duchenne community until there is an end to this devastating disease.

Solid Biosciences is proud to join the global rare disease community again this year to observe Rare Disease Day, which takes place annually on the last day of February.

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